PUBLISHED FOR FRIENDS OF CONQUER FRAGILE X FOUNDATION
Summer 2007 Newsletter
NOTE FROM THE CHAIRMAN

Dear Friends:
The 2006/07 season in Palm Beach was abuzz with activity. A busy fundraising season helped us welcome many new friends and supporters to our CFXF community. Thanks to the generosity of Mrs. ViWerner, our annual Palm Beach event in February was
a tremendous success. Vi has been one of our most passionate and generous supporters since the inception of CFXF – A very special thank you to Vi. Next year, new board member Beverly Robbins and her husband, Edwin, have agreed to host our annual
Palm Beach event on Sunday, February 3, 2008 at their home.

Dr. Nick Jones, a fragile X grandparent and Georgia dentist, recently held a very successful fundraiser for our benefit at his home in Atlanta. We are very grateful for his support and that of all our donors.

In April, over a year of hard work and planning culminated in the first Florida Fragile X Research Conference – “From Mechanisms to Medicine”. I had long known of the desire within the fragile X research community for a meeting in which newer, more junior fragile X investigators were provided an opportunity to present their work to their peers and to senior investigators. However, CFXF lacked a local partner until The Scripps Research Institute moved to South Florida. When our fragile X research

collaboration with Scripps Florida began last year, we raised the issue of such a conference in South Florida and found our willing co-host. The conference organizing committee worked together for over a year to make this dream a reality. Many thanks to Barbara Noble, The Director of the Office of External Affairs at Scripps Florida for the support she provided at so many levels. A thank you also goes to Mr. Stuart Geiger, Senior Global Product Manager of Abbott Molecular, for his support of our first conference. Very special thanks to our guest speakers, Dr. David Nelson, Dr. Fabrizio Gasparini and Dr. Randall Carpenter. Their
enthusiastic participation made this a very special meeting. Read more about the conference in this newsletter.

InMay, I was honored to be re-appointed to a second term on the President’s Council on Persons with Intellectual Disabilities and I will serve the next two years with as much enthusiasm and energy as the gravity of this task demands. Without reservation, I can tell you that I am truly humbled by the dedication and enthusiasm each and every member of the Council brings to the discussion. They work tirelessly to inform the national dialogue on persons with intellectual disabilities with their own unique experiences and knowledge. I look forward to continue the work to bring fragile X into the national spotlight.

Again, thank you all for your support throughout the year. Enjoy your summer!


HARRIS HOLLIN AWARDED THE DOROTHEA LYNDE DIX
HUMANITARIAN AWARD BY THE ELWYN INSTITUTE

At the recent Florida Fragile X Research Conference, the Dorothea Dix Humanitarian award was presented to Harris Hollin. Making the presentation for Elwyn Executive Director, Dr. Sandra Cornelius, was Brenda Finucane, (with the enthusiastic help of Matthew Hollin) who discussed Harris’ unique contributions to Elwyn over the years. Harris has been a very active supporter of Elwyn for many years, long before his
grandson, Matthew was born with fragile X. Harris joins the ranks of prior award winners Edward Zigler, Ginny Thornburg, former first lady of the Commonwealth of Pennsylvania and Alfred A. Baumeister, as one of an elite group of exceptionally giving individuals. Congratulations, Harris.

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