| MESSAGE
FROM THE PRESIDENT
It’s hard to believe that four months have
passed since our last Newsletter, and in this
Newsletter we have some very good and important
news to share with you, letting you know some
of what your support and friendship have helped
us to accomplish.
We also want to thank you for your many comments
on the new format of our Newsletter, which we
worked hard to develop so that you would find
it informative and interesting. Many of you feel
that we have found just
the right button. At the same time, your comments
and suggestions for its continued improvement
are greatly welcome.
In April we will be celebrating the second anniversary
of Conquer Fragile X Foundation. I want to thank
all of you: our generous supporters, our Board
of Advisors, our Scientific Advisors, our participating
parents and Parent Group Leaders - all of whom
have helped us to make the exceptional strides
we have made in such a short period.
Recently, someone referred to the “burden”
that has been on my shoulders in these early stages
of the Foundation. That brought to mind an advertisement
of many, many years ago: a little boy is carrying
another little boy. He is asked, “Isn’t
he a heavy burden for you to carry?” The
answer, “He’s not heavy, he’s
my brother.” This effort has never been
a “burden” for me. Matthew is my grandson.
Harris Hollin
President
| “Fragile
X is a ‘research portal’ for other
brain disorders. It is the leading-edge candidate
for a breakthrough in understanding many other
diseases, especially autism.”
Dr. Randi Hagerman in her presentation
to the U.S. Congress in 2000.
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Tea Honoring
Donors
On February 13, 2001, Sande and Harris Hollin
sponsored an afternoon English Tea and Grand Piano
Recital in appreciation and honor of those donors
that had contributed at the $500 to $25,000 level.
It was held at the Palm Beach Country Club where
the award-winning Argentinean pianist, Dario Ntaca,
performed Argentinean tangos and Chopin waltzes.
In addition to being an award-winning concert
pianist, Maestro Dario Ntaca is a conductor and
has formed his own symphony orchestra in Argentina.
He has also founded two international youth symphonies
on
behalf of the government. In addition, he is music
director for a music festival in San Luis and
is Music Director for the Guild of International
Piano Competitions.
Dr. Howard Cedar
Receives A National Institute of Health Grant
We were thrilled to learn that the NIH has agreed
to fund one of our own outstanding scientists
in Fragile X research, Dr. Howard Cedar (The Hebrew
University of Jerusalem), who is a recipient of
the Israel Prize for Science. This grant, which
is a new milestone for our virtual Fragile X Research
Center, is being co-funded by FRAXA Research Foundation.
In keeping with Harris Hollin’s policy that
we advise our scientists and participating institutions
of all possible grant funding opportunities for
research in Fragile X, he advised Dr. Cedar of
this opportunity. Dr. Cedar wrote, “The
only reason I knew about the NIH program was through
you. Kol Hakavod to you !!”
Welcome
New Advisors
We are very pleased that the following have agreed
to join us as members of our Board of Advisors:
Heinz Eppler, Palm
Beach, FL
Barkley Henderson,
Palm Beach Gardens, FL
Phyllis Siegel,
Owings Mills, MD
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