Raising a child with special
needs creates a unique strain on families. At
the same time , parents can also appreciate the
many positive abd endearing aspects of their children
with Fragile X syndrome. the children themselves
are often the best ambassadors for increasing
awareness of Fragile X in the press and in thier
communities. Won't you help us help them?
what families are saying about their experiences
with Fragile X:
"Not knowing the cause of a child's mental
impairment can cause more destruction in a family
than knowing it, facing it, and finally accepting
it, thereby giving each member of the family more
freedom to love each other and less time to blame
" It's easy to have lots of
self-pity and anger with the situations that life
deals. However, they accomplish nothing. It is
better to move on with some sense of humor, love,
and courage because these are the things that
do make us strong."
"Last Christmas, I discovered I was the Fragile
X carrier in our large family. The bottom dropped
out of my world. Now I thank God for the knowledge-my
children and grandchildren have options."
"My son has a great imagination.
Sometimes he talks to himself and answers in another
voice. He imitates comedians, listens to the news,
weather, sports, and watches cooking shows. He
is very observant- he knows a lot more than he
can bring out."
"There is so much I
could share and things I have learned over the
years. I would love to have the support of talking
to others who understand."
Some Special People!