Fragile X Resources

The following Fragile X resources are currently available. For information on ordering, please contact the specific agencies, resource centers, or publishers. This list will be continuously updated as additional resources become available.

Books and Pamphlets

The Fragile X Child. (1992).
B.B.Schopmeyer & F. Lowe
($39.95 plus $5.25 shipping).
Singular Publishing
Group, 4284 41st St.
San Diego, CA 92105-1197
(1-800-521-8545)

Educating Boys with Fragile X
Syndrome. (1994).

C. A. Spiridigliozzi,
A. M. Lachiewicz, C. S., MacMurdo,
A. D. Vizoso, S. M. O'Donnell,
A. McConkie-Rosell, & D. J. Burgess ($10, checks to DUMC)
(919-684-5513).
Gail Spiridigliozzi, Child Developrnent
Unit Box 3364, Duke University
Medical Center, Durham, NC 27710

Behavior and Development in Fragile X Syndrome. (1994).
E. M. Dykens, R. M. Hodapp,
& J. F. Leckman.
Sage Publications
2455 Teller Road
Thousand Oaks, CA 91320

A Medication Guide for Fragile X
Michael R.Tranfaglia. ($25).
FRAXA Research Foundation
P.O. Box 935
West Newbury, MA 01985
(978)462-1866
E-Mail: info@fraxa.org

Fragile X Syndrome:
Diagnosis, Treatment and Research, Second Edition. (1996)

R. J. Hagerman & A. Cronister ($35)
Johns Hopkins University Press,
2715 N. Charles St.
Baltimore, MD 21218-4319
(410-516-6956)

Fragile: Handle with Care
Understanding Fragile X Syndrome. (1996).

M. Braden ($25).
Avanta Publishing Company
75 South Elliot St.
PO. Box 17023
Chapel Hill, NC 27514
(919-967-0322)

Articles

Hagerman, R. J. (1997).
Fragile X syndrome: Meeting the challenges of diagnosis and care. Comtemporary Pediatrics,
14(3), pp. 31-59.

Bailey, D.B., & Nelson, D. (l995).
Fragile X Syndrome. Mental
Retardation and Developmental
Disabilities Research Reviews, 1(4).
Special issue on fragile X syndrome.

Freund, L. 5. (1994).
Diagnosis and developmental issues for young children with fragile X syndrome. Infants and Young Children, 6(3), PP. 34-45.

Mazzocco, M., & O'Connor, R.
Fragile X Syndrome: A guide for teachers of young children. Young Children. (November 1993), Pp. 73-77

Internet Links, Resource Centers, Agencies

Conquer Fragile X Inc.
P.O. Box 128
Palm Beach, FL 33480
Telephone 561-833-3457
Fax: 877-275-1192
E-Mail: mail@cfxf.org

FRAXA
45 Pleasant St.
Newburyport, MA. 01950
Phone: (978)462-1866
Fax: (978)463-9985
E-Mail: info@fraxa.org
Website: www.fraxa.org


National Fragile X Foundation
P.O. Box 190488
San Francisco, CA 94119-0488
Phone 1: (800)-688-8765
Fax: (925)938-9315
E-Mail: NATLFX@FragileX.org
Website: http://www.FragileX.org

OMIM
(Online Mendelian Inheritance in Man) database is very comprehensive and written for scientists. Click Here
Notre pharmacie en ligne viagra generique en France.

Fragile X Research Foundation of Canada
167 Queen Street West
Brampton, Ontario
Canada • L6Y 1M5
E-Mail: NATLFX@FragileX.org
Web Site: www.fragile-x.ca

National Fragile X Foundation (US)
PO Box 190488
San Francisco, California 94119
Local Telephone: 925-938-9300
Telephone (toll-free): 800-688-8765
Fax: 925-938-9315
Web Site: www.nfxf.org
Email:
NATLFX@FragileX.org

Fragile X Association of Germany
24576 Bad Bramstedt
Goethering 42
Telephone 04192/4053
FAX 07944/411
Web Site: www.frax.de
E-Mail: verein@frax.de

Policy Statement of the American College of Medical Genetics on when and how to test for fragile X syndrome. Click Here

MIND Institute.
Medical Investigation of Neurodevelopment Disorders

Parent to Parent of Miami
A Community Parent Resource Center for families who have children and adults with disabilities

Dutch association of parents of children with
Fragile X www.fragielex.nl

To learn more about Dr. Karen Pape's TASC approach to approach to treatment and interventions, check out her website at: www.tascnetwork.net .

 
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